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March 27, 2013 10:07 am

Hi bill rowe. Thanks for your comment. Do you have any thoughts on how ONC could address the problem you identified concerning the reliability of self-reported data?

March 27, 2013 5:46 pm

Thanks for your comment, royjbussewitz. How could Health IT be used to help consumers understand their decision in layperson language, so that they can make a truly informed decision?

March 27, 2013 7:17 pm

Welcome to Planning Room healthhats and thank you for commenting.

In thinking about multiple contributors to a single health record, do you believe it is important to label what person has input the information? (See § 3. Role of government for more information on “meta-tagging”.)

March 27, 2013 10:12 pm

Welcome to Planning Room, jherbert. Do you agree with bill rowe’s comment that there are issues with reliability and validity of patient-generated health data? If so, are the quality problems caused by patients misusing eHealth tools or are they caused by something else?

March 27, 2013 10:13 pm

Thanks for your comment, peter groen. Are you suggesting that if consumers had access to better technology, the transition to new eHealth systems would be easier? If so, what type of health IT would be most effective?

March 27, 2013 10:14 pm

Welcome to Planning Room, srtupper, and thanks for your comment. Are you proposing that ONC help develop education programs and curriculum to so that patients and providers can communicate with each other better? What do you think the biggest communication problems are?

March 28, 2013 7:07 am

Welcome to Planning Room Sandra and thank you for sharing some of your experiences with your HMO.

It sounds like you have had difficulty viewing your health records on your computer after receiving them from your HMO. Do you think ONC should focus on encouraging the development of tools that make EHRs easier to search? Would a tool like “Blue Button” (discussed in §3) be valuable in solving some of your current problems?

March 28, 2013 9:53 am

Welcome to Planning Room, suggestion, and thank you for your comment. In mentioning an anonymous patient ID, are you suggesting that a patient could use the anonymous patient ID number to access specific health records online?

March 28, 2013 9:57 am

jherbert, do you think that patients will accept that their de-identified data will no longer belong to them? What could ONC do to help patients accept this?

March 28, 2013 11:05 am

Thank you for your comment, cascadia, and welcome to Planning Room. You can tell us more about how you think HealthIT can strengthen the relationships and outcomes between patients and their care teams here.

March 28, 2013 11:32 am

Welcome to Planning Room, madelinemeyer3, and thank you for your comment. Both quality of data and identification of which data is most valuable to providers and patients are important parts of ONC’s plan. You can comment more on those specific issues here.

March 28, 2013 11:39 am

Thanks for your comment, jherbert. Could you give an example of some of the delays you encountered trying to implement functionality in line with the Meaningful Use program?

March 28, 2013 12:45 pm

Thank you for sharing this experience, srtupper. Could you tell us a little more about a time when you witnessed communication challenges related to patient attitudes?

March 28, 2013 12:55 pm

Welcome to Planning Room, ileana balcu. Thank you for your comment. ONC is concerned about the different ways in which the government can act to both improve HealthIT tools and to shift both patient and provider attitudes towards HealthIT. You can read more about these issues and share any other ideas you have, here.

March 28, 2013 6:49 pm

Thank you for your reply, royjbussewitz. What do other commenters think about royjbussewitz’s suggestion that the government should require that all federally funded studies contain a substantive summary written in lay language?

March 28, 2013 9:25 pm

Hi glenfmarshall. ONC is looking for information on how people supply clinically-relevant data about themselves in this section Patient Generated Health Data. Your comment would be helpful in furthering the discussion there.

March 28, 2013 9:26 pm

Thank you for your comment, glenfmarshall. How can the government help define a wider sense of what data is “health information”?

March 28, 2013 10:43 pm

Thank you for your response, sandra. Have other commenters out there had similar experiences to sandra’s, either on the consumer side or the provider side?

March 28, 2013 11:17 pm

Thank you for your comment, glenfmarshall. Do you have any suggestions for how ONC can address those questions?

March 28, 2013 11:30 pm

Thank you for your comment, sandra. Under this section of the plan, ONC is focusing on empowering patients to use Health IT to make healthy choices and better health care decisions. At the moment, ONC is not looking into patient billing practices. However, do you have any ideas about how ONC could encourage HealthIT that does not leave the consumer out in the cold?

March 28, 2013 11:47 pm

Do you have any suggestions for what specific information the government should require that providers include in after visit notes?

March 28, 2013 11:47 pm

Thanks for your comment, glenfmarshall. What do others think about the idea of a hyperlinked “translator” tool?

March 29, 2013 12:58 pm

Hello Ileana balcu and thanks for your comment. It seems that you are saying that certain providers will need to be educated about various ehealth tools before they will feel comfortable using these tools. Do you think that the non-punitive consultancy will help enhance these providers’ ability to give their patients better access to their records?

March 29, 2013 3:11 pm

Thanks for your comment and welcome to Planning Room, tiger.lilly.7315. What specifically would you like a system like that to accomplish?

March 29, 2013 4:28 pm

Welcome to Planning Room, sue dementad. We wanted to let you know that Planning Room is run by the Cornell eRulemaking Initiative (CeRI). The site is part of an open government project to improve public participation in policymaking by government agencies. The main goal of the site is to provide useful and effective comments to the agency. Our job is to help every person air his or her views in the most effective way – whatever those views are.

March 30, 2013 12:13 pm

Welcome to Planning Room, curious and thank you for your comment. Ensuring that consumers have adequate access to, and control of, their health information is an important goal of the ONC.

March 30, 2013 5:50 pm

Thanks for your comment, tanja meece. How do you think eHealth apps could keep users interested in entering information? For the smartphone apps that you do use all the time, what sort of things keep you interested in using them?

March 31, 2013 1:58 pm

Welcome to Planning Room, paulwinner and thanks for your comment. Ensuring that consumers have adequate access to their health information and are able to share in decisionmaking with their providers are important goals of ONC. You can read more about shared decisionmaking here.

March 31, 2013 2:20 pm

Thank you for your comment gyan patra, and welcome to Planning Room. Can you provide any examples of how patients might be unobtrusively given reminders regarding their medications? Do you know of any existing mobile technologies that provide the alert or scheduling features you suggest?

April 1, 2013 8:08 am

Welcome to Planning Room, rondtroy, and thank you for your comment. It sounds like you may have participated in an ONC training program for IT professionals. Do you have specific suggestions for how ONC could have improved the training program to promote health IT?

April 1, 2013 8:17 am

Welcome to Planning Room, and thank you for your comment, icarewave. You can read more about ONC’s approach in using health IT to enable research here.

April 1, 2013 3:25 pm

Welcome to Planning Room, broadthinking. How could ONC encourage people who work in underserved communities to take the lead in developing training or educational material?

April 1, 2013 3:27 pm

Thank you for your comment, broadthinking. Do you have any suggestions for what ONC can do to promote standardization? Can you elaborate on how Blue Button could enhance the discussion as a possible framework for interoperability and ease of use?

April 2, 2013 10:14 am

Welcome to Planning Room, and thank you for your comment. It sounds like you have had good experiences using eHealth apps. What features of Noom and FitBit make them attractive to use? You mention that you wish you did not have to use so many apps to keep track of similar things. Do you think that individual apps need to be able to do more?

April 2, 2013 10:16 am

Thank you for your comment. Can you explain how you use NFC tags on your medications to avoid reminders? Do you agree with gyan patra’s suggestion that medication management programs should include auto scheduling?

April 2, 2013 10:43 am

Welcome to Planning Room, eddie morgan, and thank you for your comment. You mention that you had difficulty finding information in a quick search for medical records apps. ONC would like to use HealthIT.gov as a “one-stop shop” for the public to learn about health IT and eHealth tools. Do you have any suggestions for how ONC can improve HealthIT.gov or what else ONC can do to encourage consumers to use medical apps?

April 2, 2013 1:18 pm

Thank you for your comment, gmathews71. Could you describe what universal standards you think the government should create?

April 2, 2013 1:49 pm

Thank you for your comment claudia brown, and welcome to Planning Room. You can read more about, and comment on, ONC’s efforts in health IT education here. Have you used any other educational resources from ONC?

April 2, 2013 3:31 pm

Welcome warwick, and thank you for your comment. Do you have any thoughts on how the government can encourage patients to provide PGHD and encourage providers to incorporate this data into treatment strategies?

April 2, 2013 3:33 pm

Thank you for your suggestion, eddie morgan. It sounds like you have some background in armed services health care. Do you have any thoughts on how the government could facilitate sharing the data you discuss beyond the armed services context?

April 2, 2013 6:12 pm

Welcome to Planning Room, gmartin. Do you think having a national health ID will encourage providers to offer their patients a way to view, download, and transmit their electronic health information?

April 3, 2013 11:11 am

Thank you for your comment, gmathews71. You raise interesting points about the time and resource constraints providers face. The feedback ONC receives will help them evaluate where they should focus their health IT efforts, which may include working with agencies to develop new regulations and working with legislators and others to develop new legislation.

Given the current fee for service payment model, what do commenters think the government can do to make it easier for providers to incorporate PGHD into their work flow?

April 3, 2013 1:35 pm

You mention correction of the entries. How would that work? Would everyone (the patient, the family, professionals and designated caregivers) all have access to the information in order to correct it, or do you have some other idea in mind?

April 3, 2013 2:15 pm

If ONC sponsored a collaboration to create a shared dictionary, how do you think they should approach that project?

April 3, 2013 9:06 pm

It sounds like you’re saying that ONC should help create a common protocol for information first, before it works to improve the quality of patient inputted information. Do you (or anyone else) have thoughts on whether this is the right order?

April 3, 2013 11:15 pm

Thank you for your comment egombrich, and welcome to Planning Room. You mentioned two Apps your company uses to create strong links between health information and the numerous parties involved in patient care. Are their specific ways the government could incentivise other companies to adopt these Apps and other eHealth tools?

April 3, 2013 11:16 pm

Welcome to Planning Room iamherring, and thank you for your comment. It sounds like you had a positive experience with online health records and would like to see them expanded. You mentioned that you would like the government to encourage standards to include the ability to track health issues throughout the year; could you say more about this? Do you mean that you would like the ability to add to your health records at any time?

April 4, 2013 9:00 am

Thanks for telling us about a tool that works well for you, tanja meece. So that others know which hydration reminder tool you are referencing, could you share its name?

You mention that unobtrusive monitoring is an important feature to you in a health management app. Does the app work as just a reminder alarm with nice bells and whistles or does the app monitor your health unobtrusively in other ways?

April 4, 2013 1:19 pm

Thanks for your response, healthhats. Does anyone else have ideas for what this collaborative project would look like?

April 6, 2013 9:17 pm

Thank you for your comment, tanja meece. Do you have any suggestions for how the government can identify the uses of PGHD that will achieve these benefits?

April 6, 2013 9:23 pm

Hi hrdahlman. Thank you for your comment, and welcome to Planning Room. How can the government best support the uses of Patient Portals that you suggest?

April 6, 2013 9:37 pm

Thank you for your comment, hrdahlman. It sounds like you are suggesting a need to balance information sharing with guidance. How have you been able to accommodate that balance in practice?

Do you have any suggestions for what the government can do to encourage patients to take ownership of their information and health?

April 7, 2013 5:08 pm

Welcome to Planning Room planotim, and thank you for your comment. In trying to make health IT more accessible for patients, you suggest the use of a patient’s name @ a specific URL as their log-in. Could you elaborate on the benefits this approach would have, as compared to a user-selected name? Would the likelihood of duplicate names make your system confusing for providers?

April 8, 2013 12:52 pm

Thank you for sharing your experience, tanja meece. What experiences have others had using mobile apps to manage their daily and long-term health?

April 8, 2013 9:17 pm

Thank you for your comment, hrdahlman. Can you elaborate on how you foresee statewide HIEs supporting your practice and patients in the future?

April 11, 2013 8:50 am

Welcome to Planning Room, health lead-er, and thank you for your comment. What do you think is the best way for ONC to connect the right community groups to the patients in underserved communities who do not know about the resources they are eligible to access?

April 11, 2013 9:04 am

Hi hrdahlman, thank you for your comment. You mention research which shows that patients experience higher quality care when they have access to their health information. Could you share some more detail about those studies or any links to the research? Also, it sounds like you think that setting standards for Patient Portals would improve patient care. Do you have any particular standards in mind?

April 11, 2013 9:21 am

Welcome to Planning Room, christine.sinsky. Thank you for your comment. How can the federal government best encourage development of EHRs with improved usability for practices which have developed a team based model of care?

April 11, 2013 10:21 am

Welcome to Planning Room, Ispikol, and thanks for your comment.

You note that electronic health records could be set up as a communication device to take care of populations outside the office. In your experience, have you seen any services that do this effectively?

April 11, 2013 10:21 am

Thanks for your comment, Ispikol. You note that a large problem is that different systems do not communicate with one another. Can you give examples as to how this issue has impacted your workflow as a physician?

Do you have any suggestions as to how electronic health record companies could be incentivized to make this easier?

April 11, 2013 12:14 pm

Hi lee jarm. Welcome and thanks for commenting. royjbussewitz appears to have identified informed consent as one issue for government to focus on in helping a provider communicate a patient’s treatment choices with other relevant providers. Are there other ways that you think the government could help facilitate this goal?

April 11, 2013 12:46 pm

Thank you for your suggestions, Ispikol. Does anyone have other suggestions for how developers could be incentivized to make products that are compatible with each other?

April 13, 2013 9:15 am

Thank you for your comment, lee jarm. Educating patients through health IT is an important part of ONC’s plan going forward. You can read more about what ONC has already done and also comment on what they should do in the future, here.

April 13, 2013 11:55 am

Thank you for your response, planotim. What do other commenters think of planotim’s suggestion of creating a common identity profile that providers and services could access when authorized?

April 14, 2013 2:12 am

Thank you for your comment, concernedcitizen1952, and welcome to Planning Room. Ensuring that consumers have adequate access to, and control of, their health information is an important goal of the ONC.

April 15, 2013 12:05 pm

Hi lets get a grip and welcome to Planning Room.
ONC’s work on EHRs and health IT is governed by HITECH Act regulations. The Health Information Technology for Economic and Clinical Health Act (HITECH Act or “The Act”) is part of the American Recovery and Reinvestment Act of 2009 (ARRA). For more, see: http://www.healthit.gov/policy-researchers-implementers/health-it-rules-regulations
It sounds like you don’t think Health IT can assist providers in delivering compassionate care. How, if at all, do you see such systems being valuably utilised by healthcare providers in order to improve their service to patients rather than draining resources and time?

April 15, 2013 7:57 pm

Thank you for your reply, lets get a grip. Do you have any suggestions for what ONC can do to enhance the ability of small primary care practices to deliver quality compassionate care and encourage patients to become more engaged in their health care?

April 16, 2013 8:47 pm

Welcome to Planning Room willr, and thank you for your comment. Can you elaborate on what specific challenges there are relating to interoperability and tracking patients across different care settings?

April 25, 2013 4:55 pm

Welcome to Planning Room susanchull and thanks for your comment. What do others think about this system of ONC challenges that encourage HCOs, ACOs, PCMHs and Payers to work with innovators?

April 25, 2013 5:03 pm

Thanks for your comment susanchull. Several other commenters have noted problems of interoperability with PGHD. Could you describe the work being done by the MOHR Project and eQueri to deal with the interoperability problem in Section 1: Benefits and challenges?

http://planningroom.org/healthit/issue-posts/pghd/#1

April 25, 2013 5:13 pm

Thanks for your comment susanchull. What can the federal government do to support the development and adoption of person-centric profiles maintained and updated by the consumer?

April 25, 2013 5:21 pm

Thank you for your comment susanchull. Does anybody else have ideas for incentivizing virtual and mobile care outside of the 4 walls of hospitals?

April 27, 2013 11:28 am

Welcome to Planning Room, doctormd1985, and thank you for your comment. In this strategic plan, ONC has not proposed to adopt specific technology standards. ONC wants to help promote eHealth tools that are useful for patients and providers. How can the government promote the development of these technologies, especially for underserved populations, without encountering the problem you’ve identified?

April 27, 2013 11:42 am

Welcome to Planning Room, ajchen, and thank you for your comment. Do you have examples of platforms like this that would guide ONC in developing something similar? How could ONC overcome problems like inaccurate translations?

May 2, 2013 11:02 am

Welcome to Planning Room and thanks for the comment thanga prabhu. From your experience as a physician have you seen the benefits of EMRs in helping patients become more active in their care?

May 2, 2013 10:43 pm

Thank you for your response, thanga prabhu. Have others had similar (or different) experiences with EMRs in helping patients become more active in their care?

May 8, 2013 6:59 pm

Welcome to Planning Room, rich, and thank you for the comment.

It sounds like you’re saying that clinical data needs to be processed to make it helpful to consumers. How should this data be presented to consumers to “empower, educate, and reinforce” healthful choices?

May 9, 2013 6:20 pm

Thank you for your comment and welcome to Planning Room, sean cahill. It looks like you are already familiar with the commenting process. However, commenting on our site is a little different. The issue posts and sections on Planning Room are designed for targeted commenting, which encourages discussion on specific issues. You can visit our about section for more information. It may be helpful to remove the headings from your comments to give yourself some more room while also making them easier for other commenters to read.