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People in the communities (health navigators etc) should take the lead in developing training or educational material – not the government, not the MCOs. Why? Because the feds (through MCOs etc) are out of touch. Lets encourage video development etc from the street on up and not the other way. Let’s encourage the use of storytelling from real consumers to consumers (C2C).
In my opinon HealthIT.gov is not going to get many eyeballs. Most people Google and are more likely to land on WebMD – why compete? Why not partner with WebMD or Mayo for website info? Agree that trusted sources are key, but I don’t think the Feds will ever have that level of trust from a branding perspective so why waste resources to duplicate that?
And let’s focus on mobile apps – not websites. Mobile is where it’s at – especially when it comes to reaching folks in underserved areas where access to Internet is an issue.
I’m worried that we still haven’t solved the larger question of standardization (EHR platforms, etc.). Still too many unresolved issues around MU. PGHD is key, but only if there is wide adoption of standards (think API) that allow developers to build apps that most EHR platforms can accept. Then, depending upon the need between patient and consumer, care plans could be as simple as deciding upon which data fields to pull from.
The Quantified Self movement is growing and it’s important. I would be interested in seeing draft policy where we can see some guidelines about a) who owns the data and b) how it’s shared. Right now many QS apps do NOT provide the data back to consumers once the consumer no longer wants to subscribe to the app. Or they only allow certain pieces… more »
I think Blue Button is a great place to start with this discussion in terms of looking at it as a possible framework for interoperability and ease of use. « less
The platforms have to be standardized to allow for consumers and various providers to easily enter and extract data – or shared-care plans fall apart. The permissions piece is key. Consumers need to be educated on who (providers/payors/caregivers) can see what (health data). This is especially important in the areas of behavioral health.
Data entry on the consumer side should be simple, simple, simple and driven from mobile apps . This should include the ability to scan a Rx by snapping a picture from the phone, etc. etc.
There are so many vendors doing all of this – the question is really one of subtraction at this point. I like the idea of Blue Button being the common denominator (platform) that developers and consumers can work with.
I would say: focus on video. Chunking down training & education into 2 min bites. Open up a YouTube Channel. Then do a campaign. Offer small cash prizes and a chance for “your video” to be featured on the channel. Look for partners who can help facilitate that (a video production co. that would help edit/package). I would be less inclined to lean towards the usual “outreach” suspects – since we know very few campaigns have been effective. Healthcare for the Homeless orgs are tremendously effective at understanding what works. Nursing Home providers and personal care attendants have also gone untapped & I think they would offer some fresh perspectives on messaging and outreach.
VA, United, Aetna, Kaiser, TriCare are supporting the platform – I would look to those folks for feedback on what marketing and outreach efforts have resulted in their members using the app. Clearly interoperability is not an issue since all of those organizations run on different platforms. Then ask what data (inputs or extracts) have been problematic. I’m not close to the project, but it appears the adoption of BlueButton is taking off. If so, focusing ONC resources on increasing that adoption sounds like a good plan.
Welcome to Planning Room, broadthinking. How could ONC encourage people who work in underserved communities to take the lead in developing training or educational material?
Thank you for your comment, broadthinking. Do you have any suggestions for what ONC can do to promote standardization? Can you elaborate on how Blue Button could enhance the discussion as a possible framework for interoperability and ease of use?
We need to have a wider sense of what data is “health information”. For example, current plans seem to exclude dental health, chiropractic, non-medical psychological services, health care modalities for people from non-Western cultures, and personal practices such as exercise, diet, work habits, sleep, or family life. Restricting data to a limited or profession-parochial view limits its utility for patients and may prevent care providers from knowing key facts.
People are often seen as unreliable suppliers of clinically-relevant data about themselves. This needs to be examined and, to the extent it is true, remedied.
For example, clinical vocabulary used by providers is more precise than how patients might speak of their health. How best do we bridge that semantic canyon? Similarly, many people do not understand how to determine when they need urgent care versus self-care or non-urgent care. How do we triage more effectively, involving the patient in the process?