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I was very excited to read everybody’s comments as I had written a paper about medical apps a month and a half ago. I did a quick Amazon and Google apps search for medical records apps and did not find anything significant. I would recommend attaching healthcare apps to personal exercise apps and as to confidentiality. I think different generations have different attitudes towards medical confidentiality. Maybe it’s just a generation speaking. I would recommend having a confidentiality lever on the apps so that individuals could choose how liberal they wanted to be with their own medical information. I think having an application available on Amazon apps and Google apps would enhance advertising the program as people start questioning what is all about. I would like to command whoever’s in charge of this website. It is very well done.
There seems to be a possible correlation between exercising and decreased PTSD symptoms. When soldiers are discharged from the military they are usually given a physical and a last PT test (physical training test).
Giving discharged soldiers an app for recommended exercise monitoring and routines for after they are discharged would be relatively easy as many of these kinds of apps are online already. Connecting the app to AKO (Army knowledge online) and connecting it to DTMS (which is where soldiers can see their physical training exercise scores online) would give a discharged soldier a continuation of their exercise records and possibly routine after they were discharged.
If soldiers during the discharge process were sat down in front of a computer to download a personal app which… more »
Creating a common protocol for fitness apps such as calorie counter by myfitnesspal, weight watchers mobile apps and many other apps, that could be easily viewed and sent to medical providers and researchers would be a noncontroversial beginning to give medical institutions familiarity with the process of patient inputted information.
Thinking linearly as to 1st, 2nd, 3rd step can be counterproductive in organizational development. The thrust of my argument is creating momentum, so when quality formats for patient inputted information is created; clientele, patients and clinicians will be accustomed to getting and giving information from different assortments of devices and methods.
Think of a Gantt chart in project management where different phases run concurrently. Also, as more individuals transfer information back and forth to their medical institutions a clearer picture of what people actually want will emerge.
Welcome to Planning Room, eddie morgan, and thank you for your comment. You mention that you had difficulty finding information in a quick search for medical records apps. ONC would like to use HealthIT.gov as a “one-stop shop” for the public to learn about health IT and eHealth tools. Do you have any suggestions for how ONC can improve HealthIT.gov or what else ONC can do to encourage consumers to use medical apps?
Thank you for your suggestion, eddie morgan. It sounds like you have some background in armed services health care. Do you have any thoughts on how the government could facilitate sharing the data you discuss beyond the armed services context?
It sounds like you’re saying that ONC should help create a common protocol for information first, before it works to improve the quality of patient inputted information. Do you (or anyone else) have thoughts on whether this is the right order?
In my opinion, to support personalized medicine, two approaches are required:
1) Full integration of commercial mHealth solutions into EHRs and clinical software. In this way, the PGHD can be also incorporated seamlessly. I believe that cool mHealth solutions that resemble aplications such as Runkeeper can make obeying the care plans fun and new and trendy lifestyle that both the patient and doctor agree on.
2) The structure of data captured in EHRs must be also adapted to support personlized medicine – personal genomics and better identification of candidates for clinical trials. It is described in this book http://www.amazon.com/Medicine-Denial-Lawrence-L-Weed/dp/1456417061 but it seams that not many clinical softwares adopted this approach.
I think that for those patients and providers who wish to be more tech-enabled I think the EHR efforts are at cross purposes with with HIPAA efforts. Before HIPAA my PCP and I exchanged emails about my lab results, my glucose numbers, etc. Now emails are blocked in the institution, partially because maintaining secure messaging for all brands of ISP, POP and readers is time consuming. It’s fine for me to be able to log into the patient portal and see my latest lab results, but not much improvement in treatment efficiency if I can’t communicate with my PCP about them.
Welcome to Planning Room Sandra and thank you for sharing some of your experiences with your HMO.
It sounds like you have had difficulty viewing your health records on your computer after receiving them from your HMO. Do you think ONC should focus on encouraging the development of tools that make EHRs easier to search? Would a tool like “Blue Button” (discussed in §3) be valuable in solving some of your current problems?
Yes, asking providers to provide a Blue Button tool for consumers would help open up medical records for the consumer. To go thru 800 pages of medical records is overwhelming. My HMO will not digitize medical records from outside providers. I ended up doing a painful re-testing, because the clinc couldn’t locate my paper records from the outside provider in my HMO’s centralized medical records. What this says, is that I need control of my medical information, it’s in my best interest. Let the consumer be the check and balance to the medical institution/provider. Backed it up with legislation that ensures compliance.
One obstacle to increased interoperability is the issue of patient identity resolution, so the data sent between providers can be filed with the correct patient…while probablistic/deterministic algorythms are available, why not provide a national health ID as part of the solution…which will help vendors be in sync on a key identifier, that could be used in conjunction with other identifiers, to increase the efficiency of data sharing
Welcome to Planning Room, gmartin. Do you think having a national health ID will encourage providers to offer their patients a way to view, download, and transmit their electronic health information?
The tools that the patients have are low quality. Hospitals can force physicians and nurses to use them, but they can’t force patients. The key is to improve the tools.
Maybe ONC can help by getting direct patient feedback on the tools used and forcing vendors/ HIT departments to resolve the issues: usability and quality of data.
On the Pledge program for example, allow patients to feedback how the promised Blue Button works for them. In amazon.com style: rating plus comments.
Maybe this feedback should be an integral part of the Blue Button download? Once you tried to download you are asked how that worked for you.
We need to detach privacy and security from the health care IT domain and realize that it is cross-cutting. People have varying preferences for information access protection and sharing, with a strong overlap with other domains such as finances, employment, social interactions, and personal communication. It would be ideal if there was a single place for people to state their preferences, with a default of opt-out rather than any assumed opt-in.