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How can ONC help providers better inform consumers that they have the right to access their health information?
Have EPs endorse the use of Blue Button in Medicaid, CHIP and Medicare Advantage programs. Blue Button could also be a component of the new Health Insurance Exchanges of the ACA.
What further guidance, policies and educational materials would enhance providers’ ability to give their patients better access to their records?
Post-acute care providers, such as home health care and hospice providers, who serve 12 million patients in Medicare and Medicaid, need to be better equipped with educational materials and online resources on sharing health information electronically so that they can educate the patients and family caregivers they serve.
What are the most useful ways for federal regulations and partnerships to encourage the private marketplace to develop eHealth tools that enhance people’s ability to manage their own health care?
ONC and Federal partners could partner with private and non-profit organizations to bring together health care providers, app developers and also regulators in non-competitive incubator environments so that eHealth tools are developed for safe and effective use in the home.
What additional policies and standards would help product developers design eHealth tools to make it easier for patients and providers to communicate with each other about the patient’s care?
ONC should continue to support the development of a longitudinal care plan that would serve as the nucleus for health coordination and patient-centered care as described by the S&I LCC http://wiki.siframework.org/Longitudinal+Coordination+of+Care+(LCC).
What types of clinical data might be most useful for consumers to have in personal health decision making?
While raw clinical data might be of use to clinicians who have the knowledge and analytics to interpret and extract trends from the data it may not be particularly useful to a patient or family member making personal health decisions. Therefore, clinical data should be used to empower, educate and reinforce healthy decisions so that personal health goals are achieved through an e-enabled collaboration between the patient and their health care team.
How can health IT best support the adoption of shared-care plans that are (i) fully accessible by consumers and providers; (ii) reflect personal preferences and values; and (iii) promote joint participation in and responsibility for health choices?
E-enable care plans will not only enable primary care doctors to communicate in a timelier manner with other health care providers – such has home health agencies – care plans will serve as the central component of patient-centered care. A shared-care plan by definition has to be an agreement between patient and the care provider consisting of what health goals will be attained though treatments and interventions that improve the health and wellbeing of the patient.
Welcome to Planning Room, rich, and thank you for the comment.
It sounds like you’re saying that clinical data needs to be processed to make it helpful to consumers. How should this data be presented to consumers to “empower, educate, and reinforce” healthful choices?
SUGGESTION – shift the focus away from data and information towards using health IT to strengthen the RELATIONSHIP AND OUTCOMES between everyone on the care team – including patients and their care givers. The “r” in EMR should be “relationship” not “record”
Example: I both worked at and received my care at Group Health Cooperative (owned by its 620,000 patient/members)and we have had an EHR since 2005 and over 60% of all members use it to not only download data like labs but to stay connected to our care team via a patient portal, mobile apps, email etc combined with new roles on the health care team like 24/7 consulting nurses, and workflows that include the patient at the design stage vs after the fact (engagement)
The goal isn’t… more »
Many people discredit the group health mayo models because they are integrated systems (docs on salary and investments from health IT are kept in house vs going out the door to the insurance co’s) but this works in the “private” sector as well
PERSONAL EXAMPLE -After I left GHC I got my care via the University of Washington (uses the same EHR as Group Health) I once started to get sick a few hours before I had to fly out of town on a business trip. I called the after hours consulting nurse and she pulled up my records, authorized an RX that was sent to a national chain in Boston, when I arrived I picked it up, the next morning my doctor’s office nurse called me up to check on me. The entire event happened on the phone and online and took my needs and workflow into account and the tech enabled it.
DATA OR REFERENCES – Group Health Cooperative started their EHR implementation by giving patients access first to their clincial records and online services and is now one of the top 10 ranked health plans in the US and the top ranked in the region – http://www.ghc.org/news/news.jhtml?reposid=/common/news/news/20120920-quality.html
Critical to their success was using healthIT to identify other areas that needed to change and they also shifted to the medical home model in the last few years. https://www1.ghc.org/html/public/features/20101001-medical-home.html “For every dollar Group Health invested, mostly to boost staffing, it recouped $1.50.”
CONCLUSION HealthIT wasn’t the sole solution but it was a critical foundational component to this change and the benefits are clear both in terms of quality, patient satisfaction and provider retention. It goes way beyond merely sharing information and data and is instead a core backbone of a health care system that meets the six pillars and 3 aims of a learning health care system of the future – foundational to that is patient centered design and care (vs after the fact consumer engagement) « less