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warwick

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April 2, 2013 12:30 pm

Not all data are the same. Patients are the BEST source of data for some data (Social History, Family History for example) and good validators of other data (medications they are taking, allergies they have, current problems). Doctors are better at capturing clinically relevant symptoms, diagnostic findings etc.
We have so devalued and ‘de-informed’ patients over the last few centuries that it is easy to dismiss “all their input” – Additionally, patients are not used to giving it, dont know how to, and dont know the form to submit it in. These are not reasons to not persist in the goal of getting PGHD or in recognizing its inherent value.

As patient contributions are made easier and they get validation for the good content vs the bad, so will this become… more »

…a very important data source.

I agree “source” of data is an important data label. « less

April 2, 2013 3:31 pm

Welcome warwick, and thank you for your comment. Do you have any thoughts on how the government can encourage patients to provide PGHD and encourage providers to incorporate this data into treatment strategies?


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